So many nice issues occurring within the allergy neighborhood, so little time. Severely, these Three not-to-be-missed occasions are all occurring inside the subsequent couple of months.
1. Stroll for Andrea (Sep 22)
2. Powerful Nutter (Oct 6)
3. Meals-Free Trunk or Deal with (Oct 19)
What I like about occasions like these is that they assist deliver the neighborhood collectively, whereas elevating consciousness (and funds) in direction of a trigger that’s close to and pricey to all of our hearts: meals allergy analysis and — probably — a treatment.
Scroll down for extra particulars, and to listen to from a number of of the allergy mamas who’re working laborious behind the scenes to assist deliver these occasions to life.
September 22: Stroll for Andrea
What? The 4th annual stroll to boost funds for allergy analysis through Sick Children Meals Allergy and Anaphylaxis Program. In reminiscence of Andrea Mariano.
When? Sunday September 22, 2019 @ 10:30am-12:30pm
The place? Milne Park in Markham, Ontario
Why? See what co-founder Jyoti Parmar has to say:
It was over 13 years in the past once we had been first confronted with a meals allergy prognosis. My then 2-year-old son reacted to the residue of peanut butter on a knife I used to make him a jam sandwich. The allergist informed us there was no remedy. We had been informed to keep away from the allergen, carry EpiPens, learn labels and be always vigilant. We understood that full avoidance of the allergen was the one option to forestall a response.
By 2010 our lifetime of avoidance prolonged to many extra allergens – dairy, egg, soy, peanuts and tree nuts – however avoiding the allergens additionally meant avoiding occasions through which meals was concerned… and that was nearly every part. Despite all of the precautions we had put in place, unintended ingestion did happen and I used to be residing in fixed concern of a response. We craved a treatment.
We attended the Stroll to Axe Anaphylaxis in 2010 and 2011 and had been impressed by the analysis it was funding. We regarded ahead to supporting their efforts once more however there have been no extra walks after 2011. My husband and I talked about beginning a fundraising stroll ourselves however we didn’t get past the speaking — till September 2015 once we heard in regards to the dying of a primary yr Queen’s College scholar, Andrea Mariano. She died attributable to an anaphylactic response to a drink she ordered from Booster Juice on campus. She was 18 years outdated, and allergic to peanuts and dairy.
After I heard of Andrea’s dying, I used to be devastated. Andrea grew up in Thornhill about 15 minutes from the place my household lives. I didn’t know her or her household however her allergic reactions are much like these of my kids and her dying solidified my fears. It additionally jolted us to motion. We reached out to the Mariano household they usually too wished to channel their immense grief and heartbreaking loss into one thing large, in order that Andrea would by no means be forgotten.
In February 2016, we started working with the Mariano household and shaped a planning committee. Collectively, we organized and held the primary annual Stroll for Andrea within the fall of 2016. It was a lovely day.
We walked collectively to recollect Andrea and all these whose lives had been lower brief by anaphylaxis. We walked collectively to boost meals allergy consciousness and to point out our youngsters they don’t seem to be alone of their wrestle. We walked to discover a treatment. Be part of us!
How? Register right here.
October 6: Powerful Nutter
What? Toronto’s first ever charity impediment course for youths. In assist of the Sick Children Meals Allergy and Anaphylaxis Program.
When? October 6 @ 9:00am-2:00pm
The place? Camp Robin Hood in Markham, Ontario
Why? See what committee member, Karen Leung, has to say
My son Bobby was born 3.5 weeks early. 95% of infants born at this level are utterly wonderful, however Bobby required an 11-day keep in NICU for untimely lungs. Whereas in NICU, the nurses mentioned his pores and skin was notably delicate to the band-aid adhesives. He was additionally feisty as heck, and required a “don’t disturb except medically essential” signal on his isolette.
I solely breastfed, and even after I took him dwelling, I’d discover that he had very delicate and irritable pores and skin. His cheeks had been at all times rosy, and he always had rashes on his physique. It wasn’t till the 6-month mark, when he broke out into hives after the introduction of egg yolk, that I spotted what was occurring with him. Then it was a response to dairy. Then peanut…
His pores and skin was rashy due to low ranges of allergens in my breast milk. In the present day, Bobby is allergic to dairy, eggs, peanuts, tree nuts and seeds. It’s lots to handle, however he lives a full and enjoyable life.
The factor is, although we now have his day-to-day life beneath management, I knew I wanted to do extra. I joined a committee to boost cash for the Meals Allergy and Anaphylaxis program at Sick Children Hospital. By way of this program, analysis is being finished to create extra correct meals allergy diagnostic assessments, and progressive methods to stop anaphylaxis in food-allergic individuals. I strongly imagine Sick Children will change the longer term for Bobby, and kids with meals allergic reactions.
Please be a part of the primary ever Powerful Nutter in October. It’ll be a enjoyable day, and a good way to satisfy different households who cope with meals allergic reactions!
How? Get tickets right here.
October 19: Meals-Free Trunk or Deal with
What? Toronto’s second annual food-free Trunk or Deal with (a.ok.a. essentially the most inclusive Halloween occasion ever). To boost allergy consciousness and funds in direction of allergy analysis through the High 10 Problem/CAAIF.
When? Saturday, October 19 @ 3:00-4:30pm
The place? Inventory Yards Village in Toronto, Ontario
Why? See what High 10 Problem founder, Kathleen O’Hagan, has to say:
When my son was identified with a number of allergic reactions — together with one outdoors of the “high 10” — when he was nonetheless only a child, one of many issues that devastated me essentially the most was the considered all of the fantastic issues he’d miss out on.
On a regular basis issues like playdates and consuming out, favorite festivities like Halloween and Easter, social occasions like potlucks, BBQs — and MomsTO — all of them felt out of attain.
Out of attain, however not unimaginable. Positive, the ‘easy issues’ don’t come simple anymore. However I quickly discovered that doesn’t imply we will’t take part in our personal secure variations and create our personal pretty recollections.
So I started to hunt out allergy-friendly eating places and AllergyBites was born. Then I began #AllergyMom Meetups in order that mamas like me may hang around with mothers who get it, whereas our youngsters play close by.
And a 100% food-free Halloween occasion? That’s so that children of all ages and allergic reactions can safely participate within the festivities.
It’s heartbreaking (and scary!) to should rummage by our youngsters’ goodies to eliminate all that unsafe loot. And right here’s the factor: Even manufacturers that market themselves as “college secure” or “Halloween secure” should not essential secure for my son (because of his sunflower allergy) and numerous different allergy kiddos (because of different non “high” allergic reactions like coconut, pea proten, chickpeas and extra!).
However the Meals-Free Trunk or Deal with lets allergy children be children — they get to decorate up and go “trunk-or-treating” with out concern. How superior is that?!
The opposite wonderful thing about this now annual Halloween occasion is that it’s an excellent enjoyable kick-off for an allergy consciousness initiative and fundraiser began simply final yr. It’s referred to as the High 10 Problem, and its purpose is to unfold consciousness, empathy and compassion, whereas elevating funds in direction of an allergy analysis grant through CAAIF.
All of this to construct a extra inclusive world for our youngsters with meals allergic reactions. We’d not be there but, however I really imagine we’re nearer and nearer yearly. So I hope you’ll be a part of the Halloween enjoyable… and the combat for a greater world for our youngsters.
How? Register right here.
Pleasant. Supportive. Encouraging.
Wish to be a part of a neighborhood of like-minded meals allergy folks? Be part of the AllergyBites Neighborhood on Fb.